Oh my friends! Larry and I feel like we have moved to Bull Street (where the SC Mental Hospital is located in Columbia.) What we thought might be the solution to the meds challenge solved nothing. Kenny demanded that he be taken to his bed to perform all of his "body functions" today...like an idiot, I took him 6 times. He decided that there was too much tubing with his oxygen aparatus and was hell-bent on clamping the tube. Larry grew weary of trying to explain that if he clamped it, the oxygen would not flow. We finally just took it off of him. We need to find some busy stuff for him to do with his hands. We finally had to stop using the disposable bed pads because he tore them up during the night, picking at them and at his disposable briefs.
He really had trouble with reality today. He kept having the conversations with himself and then asking me questions pertaining to the subject of said conversation and about the other people involved. I told Larry he would have to take over this afternoon. I needed to brave the wind to go to Lowe's for potting soil. By the time I got home, Larry was firmly esconsed in my world and not liking it much.
So...we go to plan B with the Methadone. And if that doesn't work, I am considering a return to Rapid Release Extra Strength Tylenol for a while. If he were bed-ridden, it would not be so bad, but he isn't and he wants and needs to be up for a good bit of the day. Please keep praying that we will find the combination that will allow him to have a decent quality of life for a while longer.
Also pray that Larry and I will muster more patience in dealing with him on days like today. We realize that he cannot help how he is responding to the medications, but it really does tax our
patience and we truly have to dig deep to meet the challenge of the situation.
God bless each of you for you love and your prayers.
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